Dear Friends of Jacob's Cure,

It is with great hope and appreciation that I announce Jacob's Cure will be closing its doors but not its mission. This is extremely bittersweet because of the enormous growth you have made possible. Simply, our infrastructure can no longer maintain our great work. So while our doors will close, our mission will remain open.

Jacob's Cure will disperse the majority of the remaining funds to Dr. Paola Leone's lab at Rowan University School of Osteopathic Medicine to support their great work, which encompasses stem-cell therapies, gene therapies and pharmacological approaches towards treating Canavan disease.

Proudly, as a volunteer and with the support of other organizations, I will continue to work with Dr. Paola Leone. I will also continue to meet with key members of congress and Directors at the NIH and FDA to push for funding that is so desperately needed.

I want to thank each and every one of you for your endless support and generosity. This started with one mom's plea for help, and with your support, we grew to a nationally recognized disease and organization. Your dedication allowed us to DREAM BIG, and I will continue to fight in your honor.

I have had the privilege of seeing the best in people. I have felt your passion to help us eradicate Canavan disease and have marveled at seeing all of your faces at our events year after year. I don't believe there is a more committed group of donors and supporters, and for that I will always be eternally grateful. Thank you for joining me in this journey...I could never have done it without you.

My shoes were to be worn by me alone, but the mountains I climbed and conquered were because I had you by my side.

With deepest gratitude,

Jacob's Cure